Wednesday, September 28, 2005

3-5 minutes

Tonight I will address a room full of people about my son and his progress over the last 12 months. I have 3-5 minutes to do it.

The purpose of the meeting is to give parents the chance to talk about the support we have gotten from our local parent-child center. The Family Place is wonderful! Our case worker is a terrific warm friend who has helped us through many a frustrating day. With their help, Kuruna, who last year did nothing but sit on the floor, tap blocks together with his fists and scream "Da-da," has blossomed into an active communicating boy.
I won't bore you with the details. Kuruna has over 200 pages of medical reports generated since last summer. Suffice it to say, he underwent every hearing, vision, metabolic, genetic, disease, neurological test known to his doctors. He has been under anaesthesia three (or four? I've lost count) times. We still do not have a diagnosis besides "developmental delay of unknown etiology."
What we do have is an amazing team of therapists who have been working with Kuruna since last September. It is because of them that he can now walk and run, feed himself, pull on a shirt, hold a crayon and draw a circle. It is because of them that he can say and repeat words, turn the pages of a book and help me sing songs. And it is because of them that he can now say "Mommy!"
Wait, there's more! Now that Kuruna is approaching three, he must make the transition to the school system. This team, lead ably by our case worker is expanding to include a occupational therapist, a nutritionist and an early educator to help us make the transition.

No comments: